Welcome to the
PSVT Place Registry!

If you have PSVT or suspect you do, you belong here.
Paroxysmal supraventricular tachycardia (PSVT) causes sudden and unexpected episodes of rapid heart rate that start and stop without warning. PSVT is not well understood, and the experience may vary from person to person. Join the movement to bring greater understanding to this condition.

Not registered?




Joining is as easy as creating an account and filling out periodic surveys that describe your PSVT episodes. Your information is kept anonymous, private and secure.


Questions?
Please contact Mapi at PSVTPlaceRegistry@mapigroup.com or call 1-855-646-3446.


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What is The PSVT Place Registry?

The Registry offers a way to track your experience with PSVT and related symptoms. The more medical (or health) information is gathered from the community, the more clarity we can bring to this condition, together. Participation is voluntary and currently open to those living in the United States and Canada.

Why Should I Participate?

Being involved may help you better understand how to live with this condition and comfort others going through the same journey. For doctors, the information from the Registry may present a clearer picture of what it is like to live with PSVT. This may help them be more conscious of how patients feel - before and after diagnosis - and how patients feel about current treatment options. Consequently, it may help doctors improve how they diagnose and treat PSVT.

Benefits of Joining

As a member of this registry community, you will have access to surveys that track your experience with PSVT. You can then compare your report to generalized information from others enrolled in the registry (e.g., average age or number of episodes). You may also receive newsletters with helpful reminders to keep your profile up-to-date, tips for managing PSVT, and the latest on upcoming clinical trials for which you may be eligible. Patients will periodically receive electronic gift cards as small compensation for your time to complete the Registry surveys.

Please click here to see a sample Patient Case Report (PCR). Your PCR is a personalized summary of selected information that you submitted to the PSVT Place Registry. You can download, view, or print your PCR for your records or to use as a communication tool with your physician at your next visit.

Your Personal Information

The learnings gathered through this registry may be published in scientific journals or presented at scientific meetings, but your identity will never be shared. All personal information will be removed before it is shared with anyone - scientists, medical professionals, or other members of the registry community.